Psoriasis and Psoriatic Arthritis European Youth Manifesto has been created by own young european psoriasis patients representatives to improve the knowledge about the disease and to aware about our needs, fighting against the stigma and patient’s discrimination in european society.
Psoriasis and psoriatic arthritis youth european Manifesto
The well-known Halo Effect confirms that in daily life we form a first impression judgement about people in a few seconds.
In three seconds you could lose the opportunity to meet your best friend.
In three seconds you could lose the best employee for your company
In three seconds you could lose the love of your life
European young patients with psoriasis and psoriatic arthritis representatives of Europso have created the next Manifesto:
START TO FOCUS ON ME, NOT ON MY SKIN: Psoriasis patients are not usually judged for our qualities but for our visible damage. We need the society understands very well psoriasis and psoriatic arthritis and the impact in our quality of life
SEE ME AS A PERSON AND RESPECT ME AND MY PSORIASIS AS A PART OF ME: We are not just psoriasis’ patients. We are young people that live with a disease as a part of our lives. Education about psoriasis and psoriatic arthritis is the key to fight against stigma in schools.
I DON’T WANT TO BE REJECTED ANYMORE: Psoriasis is an autoimmune disease and it is not contagious but patients usually suffer discrimination because of our skin condition
YOU CAN’T SEE MY PAIN: Psoriasis and psoriatic arthritis have a very big impact in the psychological development of young psoriasis patients. People with psoriasis usually hide the disease and its impact in our lives causing problems of isolation and loneliness.
YOU DON’T EVEN KNOW ME, THERE’S NO DIFFERENCE BETWEEN YOU AND ME: People with psoriasis and psoriatic arthritis can live a full life if we have the disease under control. We need the collaboration of the society and the different health stakeholders to eliminate the barriers for psoriasis patients.
I’M SORRY. Many times we feel guilty because of our illness. But psoriasis is a chronic disease that has no cure, we do not make anything to cause our psoriasis appears.
I’M TIRED OF BEING ASHAMED. Psoriasis affects 2% of population and has physical, psychological and social effects. Psoriasis and psoriatic arthritis young patients are entitled to receive access to safe and effective treatment and health care we need.
I HAVE LOST PART OF MY LIFE. Early diagnosis is the key to control the disease and reduce the irreversible effects in our lives. If you control the disease since the beginning you can have a full life with psoriasis.
TAKE CARE OF THE CHILDREN WITH PSORIASIS. Psoriasis can affect anyone in any moment of our lifes. Children with psoriasis grow with the disease and need to be accepted in their family and social frame. Families need the support of the physicians, institutions and authorities to help children with psoriasis.
I WAS HIDING BECAUSE OF YOU: Discrimination, prejudice, stigma is the regular experience of a person with psoriasis.
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